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Caring for a Loved One
by Lucille A. Bouchard
Using the Progoff Intensive Journal method
has provided me with stability as primary caregiver for my husband
during his recent illness. During all phases of his sickness, I made
use of this amazing program, a tool I have implemented consistently
over the past five years to maintain my own health and welfare.
Nine months ago, my husband had a heart attack after a busy
day working in the yard on one of his projects. He was taken to the
Emergency Room where he was stabilized, hospitalized and later
transferred to another hospital twenty-five miles from our home. This
marked the beginning of a month-long hospitalization that included a
very successful bypass surgery. It also marked the beginning of my new
job as sole caregiver. I felt apprehensive about this daunting role, as
I doubted my ability to rise to the occasion upon his release from the
hospital.
Although the role of caregiver increased after the heart
attack, I had already been in somewhat of a caregiving role during the
time leading up to the incident being responsible for proper diet and
being affected by his health issues in general. In retrospect, I in
fact found there were many obvious clues to my husband's illness and I
was very uncomfortable and frightened with the manner in which he chose
to pay attention to the signs and symptoms of his heart problems.
About a year and a half before having his heart attack, my
husband suffered from what turned out to be a small stroke (Transient
Ischemic Attack - "TIA") one morning during breakfast. At my
insistence, he agreed to be checked the next day. He was placed on high
blood pressure medication, and underwent a series of tests but required
no further treatment. More than a year after the TIA, my husband had
become very lethargic. He admitted to "feeling lousy" and blamed it on
his medications. It was very upsetting to see him like this. Moreover,
he refused to contact his physician and shortly thereafter, he stopped
taking his medication against my advice and that of his doctor. His
decision wore on me, and I experienced guilt for not challenging this
decision. I became very distressed, and as my fears surfaced, I told
him of my concern, but he insisted that he was fine. After he pulled
away from the doctor's care, I refused to go on our annual vacation and
soon realized that in many ways, his poor health controlled my life
more than I was willing to admit.
Since I had already been using the Intensive Journal
method for a few years, I was better able to cope with the difficulty
and stress of his
declining health. My workbook was a place where I could diffuse my
anger and frustration. All of this was compounded with issues that I
was already having with my life in general, which I discovered by using
the Intensive Journal process. This discovery came about one year
before my husband's heart attack, during a summer workshop series.
Using my workbook, I searched for themes throughout my life that I
could possibly use to make positive changes and understand the pattern
of my life in general. As we were planning on moving, the issue of
decluttering the house and our lives came to the forefront. The chaos
of the clutter at home stressed me out and kept me stuck in ways from
moving on with my life. Also, I have always been solely responsible for
keeping track of financial matters in our home, something that takes a
lot of time to keep updated and organized.
These issues led me to see a common theme branching throughout various areas of my life. With the help of the
Intensive Journal method, I discovered that my ultimate concern
is that of simplifying my life. Focusing on this idea of simplicity as
a spiritual path provided me with motivation to bulldoze through the
trappings that had ensnared me. I also found that being true to myself
is a familiar theme, especially when using a section in which one
dialogues with wisdom figures in the Inner Wisdom Dialogue section _ I
realized that I often do not make changes that are important to me.
Then, on one seemingly ordinary summer evening, my husband was
struck with the heart attack. This jolting event changed my life
dramatically and presented me not only with the impact of my husband's
illness but also with multiple new responsibilities as primary
caregiver. It happened in the evening after my husband took a bath and
came downstairs reporting breathing problems. At the Emergency Room, he
was taken immediately for treatment. While he was under the doctors'
care, I sat alone in the waiting room for six hours, not wanting to
worry my family and believing that I was the kind of person who could
handle things for myself. In the waiting room, I felt a sense of relief
and thanked God that finally someone else was taking care of this man,
as I knew that the doctors, along with proper adjustments in his
medication, would keep him out of any danger. However, I was also in
denial about what had just happened, and was angry with him for not
taking better care of himself and with the possibility that he could
have died that night.
These anxious feelings awoke me at 4 a.m. one morning a few
days later. I needed an outlet for intense feelings of fear and
helplessness and I relied on my Intensive Journal workbook to calm me and bring clarity. The
words that came forth gave witness to the numerous ways my life was
turned upside-down. As a new primary caregiver, there were so many
things going on, new people to deal with, new information, and new
duties to perform. The waters of my life had become muddy.
In his book, At a Journal Workshop, Ira Progoff takes the
saying of Lao Tse, "Muddy water, let stand, becomes clear," to
emphasize the importance of stillness and the resulting phenomenon. He
states:
When we were actively engaged in our life, many things
accumulated in the water of our inner being until those waters became
muddied. The psychological equivalent of that is simply to say that we
became confused (p. 320)...Since activity has muddied our life, we now
become inactive. We take a passive, a waiting stance toward life so
that the muddy water can settle and become clear...We were brought to
the condition of stillness by a stoppage, a confusion, an apparent
failure in the conduct of our life (p. 321-2).
I came to realize that I needed to be still and let the muddy waters clear. Through the
Intensive Journal process, I recognized that this major life
change scared me. I felt trapped, thinking that I would never get out
from under this caregiver role, and that I wanted our lives back to the
way they were before the health problems began. Thankfully, writing in
my Intensive Journal workbook brought tranquility, cleared the muddy waters and gave me the encouragement to regain control over my personal life.
During my husband's month-long hospitalization and despite being
concerned with his recovery, I experienced a sense of freedom in that I
could now take a break from feeling responsible for his questionable
health. I could return home and not have to deal with it again until my
return visit the next day. I no longer had to observe him at home
during the time leading up to the heart attack while he dealt with his
symptoms on his own terms. I felt a heavy load drop from my shoulders.
I found writing in my Intensive Journal workbook regularly on the train trips to the
hospital and in waiting rooms helped me to access and cope with my
apprehensions, thoughts, and fears about this strange and uncertain
situation. Poignant examples include excerpts such as, "I don't want to
be the only caregiver," "I hate seeing him all hooked up," and "I dread
today."
There is a huge contrast in the way I handled the stress of
the heart attack while he was hospitalized compared to the feelings
that
surfaced during the weeks of recovery after he was discharged. Because
he was released quickly and unexpectedly, the people who I had assumed
would be around for support were not available. This made me very upset
and angry, and then the reality of my many newfound
responsibilities sunk in. Writing in my Intensive Journal
workbook helped me process the strong emotions for awhile but this was
just the tip of the iceberg in that this event also encroached on other
changes I had made in the prior few weeks. I was surprised at the
degree of my anger, and everything that was going on led me to feeling
very disconnected from myself, God and others, and very much on my own
with my husband's recovery at home. I wanted my old self back, the
woman who felt so much freedom during the hospital period. This led me
to work in sections of the workbook that helped me to reestablish bonds
with my faith, my old self and well-being. Also, as I reconnected with
people I had pulled away from, my uncomfortable feelings of isolation
were alleviated. I then vowed to myself to live my life differently, to
resume my normal activities and to make new friends.
Another very helpful factor that has helped me to adjust to my new duties as caregiver is the
Intensive Journal workshop. The workshops are important to me
because of my strong belief in the method. The atmosphere of the
workshop |